Transcript
If I’m talking to someone newly diagnosed, I’d say, “Tell people so they understand and they can help you.” I didn’t want to accept help. I was trying to do it all by myself with my parents. That’s it. Then I didn’t want anyone else’s help. I made it work, but if I’d had more help, I think that would’ve been beneficial.
I would say, get as much information as you can. There are so many resources now, like online, there’s actually websites for myasthenia gravis. Back then when I got diagnosed, I didn’t know of any resources besides what the neurologist gave me. But now there’s so much out there. Get as much as you can and also tell your family and friends. I told my family, but I didn’t go into it as much with friends, like not details. And I didn’t tell anybody else nothing. I wasn’t as open, actually, I wasn’t open. I didn’t tell anybody unless they needed to know. Because I just wanted to have a “normal life.” I didn’t want anyone to like see me as weak or different and treat me differently. I know the mindset, I feel like I shouldn’t have thought that way.
Definitely get the information, talk to your neurologist, be open, honest, tell your family and friends and try to get as much support as you can. That’s what I would say.
Hi, my name is SeAndrea, and I’m More Than MG.
